CMN Hero: Lyla Alamedia

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La Crosse, Wis. (WXOW) – 62 children enter a Children’s Miracle Network Hospital every minute. Over the course of a year that’s 10 million kids in need of help.

That care can not happen without you putting your money where the miracles are. A young girl from Brownsville, Minnesota is one of those miracles, and for that reason, she’s been named a CMN Hero.

Lyla Alamedia is going places. To understand why the road she’s traveling is so extraordinary you have to know where her journey began. In the hours after Lyla was born doctors told her parents they needed to prepare for the worst. “I remember being in the hospital with her and holding her and praying that someday, we’d get to see her become a little girl,” recalled Lyla’s mom, Jenny Alamedia.

Lyla was diagnosed with Trisomy 18. It means she has an extra chromosome on the 18th pair of every cell of her body. Her parents soon learned, only half of babies born with this condition survive and only around 10 percent live to celebrate a second birthday.

In her early days Lyla battled severe infections because of kidney and bladder abnormalities. At ten months old she underwent major surgery. In the years that followed, she’s continued to improve and continued to work with her team at Gundersen Health System, part of the Children’s Miracle Network, for ongoing care, therapy and support. Support that her parents say, was invaluable. “When you’re stacked that high with worry, fear and concern it definitely helps,” said Joel Alamedia, Lyla’s dad.

Health insurance does not cover everything that Lyla needs. Children’s Miracle Network hospitals have helped. They’ve paid for music therapy and an iPad that Lyla uses to strengthen her motor skills. They also make it possible for Lyla to attend Easter Seals Camp where she can spend time with kids just like her who are not only surviving, but thriving, with disabilities.

You can help give kids like Lyla every chance to be a kid, by donating to the Children’s Miracle Network.

Andrea Albers

Andrea Albers

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